I have a Niece, 18 years old with CF.
She has always been active and community orientated and has raised several hundreds of thousands of dollars for CF over the years. Straight A student and while of course can't attend a school away from home due to treatments, was attending the local Community College and getting straight A's there also.
If any of you know how CF works then you will understand when I tell you that in her teenage years things have gone downhill, to make a long story short -- She now lies in intensive care at CHOP (Childrens Hospital of Philadelphia) hooked to a ventilator, unable to breathe on her own since Thanksgiving. She was on drugs that would paralyze her, along with the ventilator, and as such was basically in an induced coma.
They have now (about 2 weeks ago) concluded that she needs a double lung transplant........ ASAP. She is on the list and from what I gather fairly high on that list.
We have been spending as much time as we can up there, obviously to support my wifes brother and sister-in-law, and we have seen a lot of progress. She is now breathing about 50% of the time on her own and the drugs that create the paralysis are being weaned slowly and it now appears that she is out of immediate danger.
Let me preface this by saying that this is no way intended to be a religious post--- but any prayers or good intentions or cosmic waves that you and your family could find the time to forward her way would be greatly appreciated. Whether it be God, Buddha, Mohammad, Zeus, Apollo or what ever you may believe in or trust, just a few positive thoughts might go a long way.
So during this Holiday Season when we all look over and appreciate all we have and hold dear -- please remember Colette in your thoughts.
She has always been active and community orientated and has raised several hundreds of thousands of dollars for CF over the years. Straight A student and while of course can't attend a school away from home due to treatments, was attending the local Community College and getting straight A's there also.
If any of you know how CF works then you will understand when I tell you that in her teenage years things have gone downhill, to make a long story short -- She now lies in intensive care at CHOP (Childrens Hospital of Philadelphia) hooked to a ventilator, unable to breathe on her own since Thanksgiving. She was on drugs that would paralyze her, along with the ventilator, and as such was basically in an induced coma.
They have now (about 2 weeks ago) concluded that she needs a double lung transplant........ ASAP. She is on the list and from what I gather fairly high on that list.
We have been spending as much time as we can up there, obviously to support my wifes brother and sister-in-law, and we have seen a lot of progress. She is now breathing about 50% of the time on her own and the drugs that create the paralysis are being weaned slowly and it now appears that she is out of immediate danger.
Let me preface this by saying that this is no way intended to be a religious post--- but any prayers or good intentions or cosmic waves that you and your family could find the time to forward her way would be greatly appreciated. Whether it be God, Buddha, Mohammad, Zeus, Apollo or what ever you may believe in or trust, just a few positive thoughts might go a long way.
So during this Holiday Season when we all look over and appreciate all we have and hold dear -- please remember Colette in your thoughts.
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